Kelley Thorson lives in Pulaski County with her husband, Donald, and their three sons. I have known Kelley for years, as my Dad was her son Kyle’s teacher.
Her youngest son Kyle has a very rare, severe disability called Phelan-McDermid Syndrome. According to the Phelan-McDermid Syndrome Foundation, there are at least 1,400 cases worldwide.
Kyle is now a fully-grown, 24-year-old man and is also non-verbal, so Kelley spoke with me about the anxiety she is experiencing now that Kyle has reached adulthood.
Missouri Health Talks gathers Missourians’ stories of access to healthcare in their own words. You can view more conversations at missourihealthtalks.org.